Sunday, 17 May 2015

It's little wonder people give up

Not my usual upbeat post I'm afraid - but I'm so frustrated I need to vent!

A few posts ago I wrote that we've been going through the statementing process for little E for the past 9 months. It's a very tedious form and report based system but the hope is at the end of it the Governnment will allocate him additional support at school so he can focus and learn to his full potential.

I've lost count of the amount of times we've had to document what's "wrong" with E rather than what's "right". The amount of times he's had to be seen by professionals who have then written their own reports about what's "wrong" with him. And the amount of meetings we've attended in order to tell new people in the process what's "wrong" with him.

It's a hugely upsetting process as K and I (and C) spend every spare minute encouraging little E to hit milestones. When he does we all feel amazingly proud of him and have crazy celebrations as we know how much effort has gone into reaching them.

This week the system stuck the boot in again.

We'd got to the stage where E had been awarded additional hours - although not enough to cover him full time as he's not deemed "severe" enough. We presumed that we were nearing the end of this particular battle. Instead we got an email from the school he's supposed to be going to that begins: "E obviously has severe needs and we do not feel that our school is the most suitable or appropriate for him". It then goes on to list in great detail why he's not welcome.

This particular mail made me feel sick to my stomach that a boy as sweet as E has been judged "not worthy" of going to their school. It also made me wonder how the same system can judge him to be "not severe enough" and "too severe" at the same time. Surely it's one or the other?

Clearly K and I will take our "man up" juice (most probably in the form of hard liquor!) and then keep fighting until we get E the place he deserves. It just feels as though it shouldn't be this hard.

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