Work - because I'm a Trustee of the charity and it's my job (when I'm not doing my "proper" job or looking after the children) to ensure that we raise awareness of Williams Syndrome and spend our (very limited) funds in the best way possible to benefit Williams Syndrome individuals and their families.
Personal - because my son has Williams Syndrome.
K and I were having a think about things the other night. He came up with an idea on how to spread the word and raise a bit of money. I had a few sips of the old vino and the idea spiralled.
So here we are a bottle (or three?) later, 6 degrees of separation from Kevin Bacon and aiming to see how long it takes us to get him to donate / acknowledge Williams Syndrome. On the way there we hope to raise some money, raise awareness and have a bit of fun.
If you fancy joining in, please go to www.justgiving.com/KevinBaconChallenge or text TKBC53 £1 to 70070. Then pass the message on and let's see how long it takes us to get to Kevin.
About Williams Syndrome
Williams Syndrome is a rare disorder. Like Downs Syndrome it is caused by an abnormality in chromosomes and shows a wide variation in ability from person to person.
Williams people have a unique pattern of emotional, physical and mental strengths and weaknesses. For parents, teachers and care workers, learning about this pattern can be a key to understanding a Williams person and helping them to achieve their full potential.
It's a non-hereditary syndrome which occurs at random and can effect brain development in varying degrees, combined with some physical effects or physical problems. These range from lack of co-ordination, slight muscle weakness, possible heart defects and occasional kidney damage. Hypercalcaemia is often discovered in infancy, and normal development is generally delayed.